Why
join the project
If you have suffered from one of these diseases for several years, or if you have been diagnosed with one, the RIR-approved physician treating you will recommend that you join the RIR network.
Is joining the RIR network obligatory?
Is joining the RIR network obligatory?
You are free to decide whether or not to join.
If you wish to be cared for by the RIR, your prescribing rheumatologist remains available to answer any questions you may have.
If you decide not to join when your RIR-approved physician recommends the network to you,
you will still be able to join at a later date if you change your mind. You simply need to tell the RIR-approved physician treating you that you wish to join the network.
If you have agreed to join the RIR network,
you can leave at any time by contacting the RIR-approved physician responsible for your care.
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Ankylosing spondylitis
Read more: Ankylosing spondylitis -
Dermato-polymyositis
Read more: Dermato-polymyositis -
Disseminated Lupus Erythematosus (DLE)
Read more: Disseminated Lupus Erythematosus (DLE) -
Gougerot-Sjögren’s Syndrome
Read more: Gougerot-Sjögren’s Syndrome -
Juvenile Idiopathic Arthritis (JIA)
Read more: Juvenile Idiopathic Arthritis (JIA) -
Psoriatic rheumatism
Read more: Psoriatic rheumatism -
Rheumatoid arthritis
Read more: Rheumatoid arthritis -
Systemic scleroderma
Read more: Systemic scleroderma
Can I ask to join the RIR network of my own accord, as a patient suffering from a rheumatic IMID (immune-mediated inflammatory disease)?
Anyone suffering from one of the following rheumatic IMIDs can ask to join the RIR. To join, simply contact the RIR-approved physician of your choice.
What advantages does joining the RIR offer me?
If you join the RIR network, you can benefit from these advantages:
- a full medical and treatment report, drawn up in accordance with international recommendations,
- additional medical opinions, if required, from specialised physicians with sound knowledge of rheumatic IMIDs,
- a treatment plan including all the latest international recommendations,
- if you have risk factors, there will be a medication check with a clinical pharmacist before the first administration of your treatment to prevent interactions between your existing medication and the drugs you are due to receive for your rheumatic IMID, and to ensure there are no incompatibilities between the treatment prescribed by your RIR physician and your other health problems,
- a maximum of 10 hours’ therapeutic education to provide you with information about your disease and its treatment, and to allow you to manage your care and spot any complications,
- a systematic follow-up session with a doctor and nurse, at least twice a year, including regular assessments and measurements of key parameters, as well as lab tests and additional examinations if required,
- monitoring of undesirable outcomes that may arise after the administration of medications used to treat your rheumatic IMID, and the reporting of these events to the competent authorities,
- case management of your treatment pathway, by a nurse trained in this type of disease,
- access to consultations for complex cases if your situation requires it, with a university professor practising abroad, in order to obtain his (her) opinion on the best treatment to offer you,
- the opportunity to access clinical studies, if your situation meets the access criteria,
- regular reports to your general practitioner so that he (she) has full information about your disease and treatment and can better handle your requests in relation to any other health issues,
- a reference document about your disease and treatment will be given to you by the RIR physician treating you. You can refer to this if necessary when abroad, or if your usual doctor is unavailable and you need to consult a colleague,
- access to other healthcare professionals (occupational therapists, physiotherapists, dieticians, social workers or psychologists) trained in the management of rheumatic IMIDs, in order to help you manage the effects of your disease,
- documentation about your disease, the possible complications of your treatment, and what to do if you experience problems, including the numbers to call,
- a link to the RIR assessment report, which is published annually and made available to the public.
How can I find out whether my doctor is approved?
How can I find out whether my doctor is RIR-approved?
To find out whether your rheumatologist is approved by the RIR, simply browse the online list.
Additionally, if your rheumatologist is approved by the RIR, he (she) will have posted their RIR certificate in the waiting room of the surgery.
If you don’t have a rheumatologist, are receiving treatment for your rheumatic IMID from your general practitioner and would like to join the RIR network, you can ask your GP to refer you to an RIR-approved specialist.
Where is the RIR network based?
Where is the RIR network based?
As the name indicates, the “RIR” is a network of medical professionals. It is not physically based in a specific location. If you join the RIR, you will continue to visit your rheumatologist approved by the RIR network, at their surgery. Their surgery may be located at a centre based outside of the RIR partner hospitals (HRS, CHL, CHEM CHdN).
To obtain the therapeutic education and certain treatments, and to attend consultations provided by the specialists treating you, you need to visit the hospital where your RIR specialist is based.
Who should I contact for more information?
Who should I contact if I have questions about the RIR?
Hôpitaux Robert Schuman (HRS) is the coordinating hospital for the RIR network. The RIR coordination team is affiliated to HRS.
You can obtain more information about the RIR network either:
- by visiting the RIR website,
- or by calling: +352 2468-1
What support tools can RIR offer me?
What support tools can RIR offer me?
A quick RA screening
A simple questionnaire, to be completed with your general practitioner, helps suspect early rheumatoid arthritis and gives you rapid access to a rheumatologist from the RIR network.
The document is also available in FR, DE, PT
My rheuma journey with RIR
Discover our e-learning module to understand how the network supports you at every stage — at home, in a day hospital, or as part of complex care.
Also available in